Menkes Kids Stories

Boys with Menkes and their stories...

frggy129


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Joined Sep 26 2010
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FEMALE
40 years old
michigan
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Menkes Kids Stories
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my son jordan is now 11 1/2 years old with menkes disease.  he wasnt diagnosed until 22 months old.  we started him on the copper histidine shots.  hes been thru alot but currently is doing great :) 

we are pregnant again with a little boy who also has menkes disease he will be born in february.  and we are trying to get as much information about dr kalers study as we can before then.  our plan is to have him in his study as soon as hes born.

 

 

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2 Comments

Reply marianne
8:27 PM on September 27, 2010 
Im happy you are here and I will give you a call tomorrow. You are definitely doing the right thing. Dr.Kaler has saved Blaines life... =) He's doing GREAT because of him.
Reply marianne
8:27 PM on September 27, 2010 
Im happy you are here and I will give you a call tomorrow. You are definitely doing the right thing. Dr.Kaler has saved Blaines life... =) He's doing GREAT because of him.