Menkes Kids Stories
Boys with Menkes and their stories...
Links
-
-
Info www.ninds.nih.gov/disorders/menkes/menkes.htmAn informational page directly from the NIH
Posted August 10, 2010 at 6:17 AM -
Our specialist and angel www.nichd.nih.gov/about/staff/bio.cfm?nih_id=0010385285Posted August 10, 2010 at 6:19 AM -
the role of copper in the body www.abc.net.au/rn/talks/8.30/helthrpt/stories/s1464162.htmPosted August 10, 2010 at 6:22 AM -
Ways To Give www.wish.org/Make A Wish foundation page
Posted August 10, 2010 at 6:46 AM -
Give Kids The Wold www.gktw.org/This is where we stayed...it is AMAZING!!!
Posted August 12, 2010 at 7:56 AM -
Channel 10 news www2.turnto10.com/lifestyles/news/2010/sep/22/health-check-menkes-disease-ar-238617/Blaines interview for his fundraiser
Posted September 24, 2010 at 5:28 PM -
www.nichd.nih.gov/news/resources/spotlight/030311-menkes-disease.cfm The latest from the NIH....
Posted June 1, 2012 at 12:24 PM -
Graduation link... www.valleybreeze.com/2013-06-05/cumberland-lincoln-area/oldest-living-boy-rare-disease-ready-graduate-chsPosted June 6, 2013 at 10:15 AM -
https://www.nichd.nih.gov/news/resources/spotlight/Pages/030311-menkes-disease.aspx NIH story �?��?
Posted October 13, 2014 at 12:12 PM -
m.valleybreeze.com/2013-06-05/cumberland-lincoln-area/oldest-living-boy-rare-disease-ready-graduate-chs#.VDv596b3bCQ Graduation story
Posted October 13, 2014 at 12:13 PM -
m.valleybreeze.com/2013-06-05/cumberland-lincoln-area/oldest-living-boy-rare-disease-ready-graduate-chs#.VDv596b3bCQ Graduation story
Posted October 13, 2014 at 12:13 PM
-
-
-
Blaine's 2nd fundraiser page https://www.facebook.com/event.php?eid=131355876933399#!/event.php?eid=131355876933399Posted May 31, 2011 at 7:18 PM
-