Menkes Kids Stories

Well, we were waiting since fall 2010 for some meds to come in from Japan that were not available in the U.S.  We were told fall, then by Christmas, then beginning of the year and were disappointed to recently learn that we will not be getting it.     His specialist though, Dr. Stephen Kaler, will be working on making the meds himself at the NIH, testing them and then Blaine will be 1 of 6 boys to try it out, if FDA approved...it'll be a while though.  YA CANT KEEP US DOWN...We can wait, cuz we have to.