Menkes Kids Stories

Boys with Menkes and their stories...

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FUNDRAISER

Posted by marianne on September 24, 2010 at 9:20 PM

 

 

   1ST ANNUAL MENKES DISEASE AWARENESS FUNDRAISER

             Saturday, October 16, 2010   6pm-12 am

LIVE BANDS        RAFFLES            FOOD                 GREAT TIME          $20

 

All donations and proceeds go to the Menkes Disease Gift Fund to aid research in this life-threatening disase.

 

For tix:

[email protected]

401-405-6619

 

To make a donation, please send checks made out to:

Menkes Disease Gift Fund

P.O.Box 5

Manville, RI

02838

write "Blaine" in the memo...

 

All proceeds will be sent to Dr.Kaler at the NIH in Maryland for research purposes.

 

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2 Comments

Reply misty
9:10 AM on September 30, 2010 
hello, i think its great ur having the fundraiser wish i could come are u taking any donations? please email me I would love to help
Reply marianne
9:21 AM on September 30, 2010 
Misty,
We are having the fundraiser at Blaines request. i waited until he was old enough to decide where he wanted to go with his "uniqueness" and this is what he decided. Please e-mail me at [email protected] and I will give you the specifics to where donations can be sent to.
Thanks!!