Menkes Kids Stories

Boys with Menkes and their stories...

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New research meds on the way

Posted by marianne on May 26, 2014 at 11:55 AM
Well, we have been waiting 5+ years, but after speaking With Dr. Kaler over the past couple of days, it Seems the experimental new meds we have been Waiting for (L-DOPS) will be arriving soon. This will help with Blaine's orthostatic hypotension, Migraines, dizziness, etc. Very exciting news for us!!

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