Menkes Kids Stories

Boys with Menkes and their stories...

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FUNDRAISER

Posted by marianne on September 24, 2010 at 9:20 PM Comments comments (2)

 

 

   1ST ANNUAL MENKES DISEASE AWARENESS FUNDRAISER

             Saturday, October 16, 2010   6pm-12 am

LIVE BANDS        RAFFLES            FOOD                 GREAT TIME      ...

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MAgazine article

Posted by marianne on August 17, 2010 at 9:54 PM Comments comments (0)

Blaine is in this article, although not noted by name...

 

New Test for Menkes' Disease Allows Early Diagnosis and Treatment

Susan Jeffrey

 

 

February 6, 2008 — Researchers at the National Institutes of Health (NIH) have developed a new test that allows early diagnosis of Menkes' disease, a fatal neurodegenerative disorder of copper metabolism. Patients who received copper-replacement therapy on the basis of this test, well before symp...

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BJG

Posted by marianne on August 10, 2010 at 10:27 AM Comments comments (0)

This is probably something I should have started 15 years ago but back then who knew about blogging? Its been a good summer so far, exceept of course for the passing of Blaine's "Gramma Girl".  Blaine was the world to her.  Their love was a very, very strong one.  i know she will be keeping an eye on him and guiding him through this recovery from knee surgery.  He'll be running around (again) in no time!!  School starts (10th grade!!!) in 22 days...ughhh...wish I...

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